Céline Dion, the iconic pop legend, has recently shared her experience with Stiff Person Syndrome, expressing her enduring optimism for a potential miracle while also acknowledging her journey of learning to live with the condition.
Celine Dion Causes Grammys Sensation with Unexpected Performance Following Stiff-Person Syndrome Diagnosis, Receives Enormous Standing Ovation
In her recent interview with Vogue France, the Canadian singer opened up about her battle with a neurological disorder that leads to gradual muscle stiffness. Since being diagnosed in December 2022, Dion has put a pause on her touring commitments and has mostly stayed away from the public eye. However, she surprised everyone with an unexpected appearance at the Grammys in February, where she received a thunderous standing ovation.
“I haven’t conquered the disease, as it still resides within me and always will. I remain hopeful that scientific research will uncover a miracle cure, but for now, I must adapt to living with it. This is me, now living with Stiff Person Syndrome,” Dion candidly shared with Vogue France. “Five days a week, I dedicate myself to athletic, physical, and vocal therapy. I focus on strengthening my toes, knees, calves, fingers, singing, and voice… I must embrace this new reality and stop questioning myself. Initially, I would constantly ask: why me? How did this happen? What did I do wrong? Is this my fault?”
Dion expressed her belief that she had two options in front of her. She could either dedicate herself to training like an athlete and putting in immense effort, or she could give up and retreat into the comfort of her home. In the latter scenario, she would spend her days listening to her own songs, standing in front of the mirror, and singing to herself.
She expressed her determination, saying, “I have decided to collaborate wholeheartedly with a medical team, using every ounce of energy and effort from head to toe. My ultimate aspiration is to witness the majestic beauty of the Eiffel Tower once more!”
Celine Dion Documentary Finds a Home at Amazon MGM
However, Dion has confirmed that she has not yet determined any plans to perform as she focuses on regaining her strength.
Celine Dion’s sister reveals that the singer is facing a challenging health condition called Stiff-Person Syndrome, which has caused her to lose control over her muscles.
